Prayers answered for boy born with rare eye condition
Mom Crystal Outerbridge says her prayers have been answered after doctors discovered a potential cure for the rare condition that threatens to leave her son blind.
Ms Outerbridge says she’s overjoyed that six-year-old son Zyare could be given “a new lease of life” and “hope for the future”.
Zyare was born with Leber’s Congenital Amaurosis (LCA) and the gradual deterioration of his retina cells could leave him blind in about ten years.
The eyesight of the football-mad youngster has already started to deteriorate as he has no night vision and struggles to see certain colours.
But Ms Outerbridge has never been able to face telling Zyare the extent of his prognosis and now she hopes she will never have to.
New gene replacement and stem cell therapies to manage and treat LCA are currently being developed in the US and Ms Outerbridge couldn’t be happier.
She said: “It’s great news. This is what we’ve always been hoping and praying for.
“I’ve just been playing the waiting game, but at last we have some good news.
“I’m now hopeful that something will happen, I just want him to be okay, I want him to be healed.
“I’ve never told my son what’s wrong with him, now I’m hoping I will never have to break the news to him. I feel relieved.”
Eye specialists originally told Ms Outerbridge to prepare for the worst by helping to teach Zyare Braille and how to walk with a white stick.
They had even warned the single mom that they may have to move overseas as Bermuda does not have any facilities for the visually-impaired.
But Ms Outerbridge, of Bailey’s Bay, refused to give up hope. She said the family had just been “living day-to-day” while praying “for God to heal”.
She said: “I was sort of shocked when the doctor at Children’s Hospital Boston told me about the new treatment.
“I was so surprised at what I was hearing I said: ‘Can you just run that by me again?’”
Anne Fulton told Ms Outerbridge that doctors are in the process of setting up a protocol, but there is lots more work to be done. She did however say the treatment “holds hope for more benefit than was previously possible”.
New England Eye Center - News
In December 2005 at the New England Eye Center in Boston, Zyare was found to have nystagmus, an involuntary, rhythmical, repeated movement of the eyes. He was also found to be far-sighted and, at aged ten months, was prescribed with glasses.
As a former practicing ophthalmologist he was the West Coast Director of LCA Vision, and Assistant Professor of Ophthalmology at Tufts New England Eye Center. Dr. Kliman did a retina fellowship at Massachusetts Eye and Ear Infirmary as a Heed Fellow
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He succeeds the retiring John J. Hynes, who has led Care New England since its founding in 2006. Keefe said his experience “at the center of health-care reform in Massachusetts” will serve him well as the federal health law, which is similar,
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New England Eye Center Ophthalmologists Named To Boston Magazines ...
Boston , MA . (December 10, 2010) - New England Eye Center is pleased to announce that Ophthalmologists Jay S. Duker, MD, Thomas R. Hedges III, MD, Katrinka Heher, MD, and Mitchell Strominger, MD have been selected by their peers as some of the Best Doctors in Boston, listed in the December 2010 issue of Boston Magazine’s “Top Doctor” issue. This marks the fifth consecutive year Drs. Duker and Hedges have been selected. Other New England Eye Center doctors that have been named to the list over the last five years include Michael H. Goldstein, M.D., Michael B. Raizman, M.D. and Helen K. Wu, M.D.
“We are pleased and honored that our doctors are consistently recognized by their peers for their outstanding work here at New England Eye Center”, said William R Sacco, Director of Public Relations for the New England Eye Center. “As a leading medical teaching institution in Boston, we take great pride in both the teaching & development of new doctors into our profession as well as delivery of first class medical care to every patient.
Each year, Castle Connolly sends out tens of thousands of invitation letters to physicians in private practice-randomly selected-as well as to the medical leadership of major medical centers, specialty hospitals, teaching hospitals and regional medical centers. Invited physicians can go online to a special restricted-access website and nominate outstanding physicians in various specialties and subspecialties “to whom you would send members of your family”. The process asks not only for doctors who excel in academic medicine and research, but also for those with outstanding interpersonal skills.
About New England Eye Center
New England Eye Center (NEEC) is the ophthalmology department for Tufts Medical Center and Tufts University School of Medicine. New England Eye Center offers a full range of comprehensive ophthalmology including treatments for cataracts, glaucoma, macular degeneration, pediatric ophthalmology and aesthetic surgery. New England Eye Center is also a leading provider of Laser Vision Correction in Greater Boston and New England offering a full range of vision correction procedures for all types of eye conditions. For more information about the New England Eye Center, go to www.NEEC.com or www.MyLasikDoc.com .
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